Mr Rod Middleton

System Architect/Project Manager, Medicine

+44 (0) 1792 606760

r.m.middleton@swansea.ac.uk

Research Links

https://orcid.org/0000-0002-2130-4420

Cellular Office - 204
Second Floor
Data Science Building
Singleton Campus

About

Rod Middleton is a Project Manager at Swansea University Medical School and System Architect of the UK MS Register.

He sits on a number of bodies looking at the implementation of MS Research in the UK and across Europe.

He is also involved with teaching in the MSc in Health Informatics, delivered within the Data Science department.

Previous to this he worked in the NHS as a senior informatics manager in Critical Care and Theatres for multiple clinical systems, including neonatal prescribing. He was responsible for trust wide multi million-pound informatics investments in Critical Care, endoscopy and ultrasound.

His current research interests are in use of registry data to drive clinical decision making and for these data to have genuine utility for people with chronic health conditions

Areas Of Expertise

Health Informatics
Project Management
Patient Reported Outcome Measures
System Architecture
Linked data
Chronic disease registry development

Teaching Interests

MSc Health Informatics

Research

Glaser A, Stahmann A, Meissner T, et al. Multiple sclerosis registries in Europe – an updated mapping survey. Multiple Sclerosis and Related Disorders [online serial]. Epub 2018 Oct. Accessed at: https://linkinghub.elsevier.com/retrieve/pii/S2211034818303614.

Middleton R, Rodgers W, Chataway J, et al. Validating the Portal Population of the United Kingdom Multiple Sclerosis Register. Multiple Sclerosis and Related Disorders [online serial]. Epub 2018 May. Accessed at: http://linkinghub.elsevier.com/retrieve/pii/S2211034818301767.

Balbuena LD, Middleton RM, Tuite-Dalton K, Pouliou T, Williams KE, Noble GJ. Sunshine, Sea, and Season of Birth: MS Incidence in Wales. Burne THJ, editor. PLOS ONE. 2016;11:e0155181.

Osborne LA, Gareth Noble J, Maramba IDC, et al. Outcome measures for multiple sclerosis. Physical Therapy Reviews. 2014;19:24–38.

Jones KH, Jones PA, Middleton RM, et al. Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. Reindl M, editor. PLoS ONE. 2014;9:e104604.

Osborne LA, Middleton RM, Jones KH, Ford DV, Noble JG. Desirability and expectations of the UK MS Register: Views of people with MS. International Journal of Medical Informatics. 2013;82:1104–1110.

Jones KH, Ford DV, Jones PA, et al. How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register. Reindl M, editor. PLoS ONE. 2013;8:e65640.

Osborne LA, Lockhart-Jones HM, Middleton RM, et al. Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis: International Journal of Healthcare Information Systems and Informatics. 2013;8:1–16.

Jones KH, Ford DV, Jones PA, et al. The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register. Reindl M, editor. PLoS ONE. 2013;8:e55422.

Publications

Research Highlights

Middleton, R., Pearson, O., Ingram, G., Craig, E., Rodgers, J., Downing-Wood, H., Hill, J., Tuite-Dalton, K., Roberts, C., Watson, L., Ford, D., Nicholas, R., & Group), . (2020). A Rapid Electronic Cognitive Assessment Measure for Multiple Sclerosis: Validation of Cognitive Reaction, an Electronic Version of the Symbol Digit Modalities Test. Journal of Medical Internet Research, 22(9), e18234
https://doi.org/10.2196/18234, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa55412
Middleton, R., Ford, D., & Naeh, D. (2017). iConsent an Electronic Consent Platform with the MS Register. In International Journal of Population Data ScienceSwansea University.
https://doi.org/10.23889/ijpds.v1i1.363, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa53023
Jones, K., Ford, D., Jones, P., John, A., Middleton, R., Lockhart-Jones, H., Peng, J., Osborne, L., & Noble, G. (2013). How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register. PLoS ONE, 8(6), e65640
https://doi.org/10.1371/journal.pone.0065640, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa16841
Jones, K., Ford, D., Jones, P., John, A., Middleton, R., Lockhart-Jones, H., Peng, J., Osborne, L., Noble, G., & Jones, P. (2013). The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register. PLoS ONE, 8(1), e55422
https://doi.org/10.1371/journal.pone.0055422, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa16846
Jones, K., Ford, D., Jones, P., John, A., Middleton, R., Lockhart-Jones, H., Osborne, L., & Noble, G. (2012). A Large-Scale Study of Anxiety and Depression in People with Multiple Sclerosis: A Survey via the Web Portal of the UK MS Register. PLoS ONE, 7(7), e41910
https://doi.org/10.1371/journal.pone.0041910, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa16849
Osborne, L., Noble, G., Maramba, I., Jones, K., Middleton, R., Lyons, R., Ford, D., & Reed, P. (2014). Outcome measures for multiple sclerosis. Physical Therapy Reviews, 19(1), 24-38.
https://doi.org/10.1179/1743288x13y.0000000094, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa18316
Jones, K., Jones, P., Middleton, R., Ford, D., Tuite-Dalton, K., Lockhart-Jones, H., Peng, J., Lyons, R., John, A., & Noble, G. (2014). Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. PLoS ONE, 9(8), e104604
https://doi.org/10.1371/journal.pone.0104604, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa18808
https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0104604&type=printable
Baker, D., Anandhakrishnan, A., Tuite-Dalton, K., Lockhart-Jones, H., Middleton, R., Ford, D., Crowe, C., & Giovannoni, G. (2016). How to refer to people with disease in research outputs: The disconnection between academic practise and that preferred by people with multiple sclerosis. Multiple Sclerosis and Related Disorders, 10, 127-133.
https://doi.org/10.1016/j.msard.2016.09.007, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa32027
Middleton, R., Akbari, A., Lockhart-Jones, H., Jones, J., Owen, C., Hughes, S., Gain, R., & Ford, D. (2017). Clinical Validation of the UKMS Register Minimal Dataset utilising Natural Language Processing. International Journal of Population Data Science, 1(1)
https://doi.org/10.23889/ijpds.v1i1.288, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa39436
Middleton, R., Rodgers, W., Chataway, J., Schmierer, K., Rog, D., Galea, I., Akbari, A., Tuite-Dalton, K., Lockhart-Jones, H., Griffiths, D., Noble, D., Jones, K., Al-Din, A., Craner, M., Evangelou, N., Harman, P., Harrower, T., Hobart, J., Husseyin, H...., & Ford, D. (2018). Validating the portal population of the United Kingdom Multiple Sclerosis Register. Multiple Sclerosis and Related Disorders, 24, 3-10.
https://doi.org/10.1016/j.msard.2018.05.015, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa40629

All Research

Journal Articles

Garjani, A., Middleton, R., Hunter, R., Tuite-Dalton, K., Coles, A., Dobson, R., Duddy, M., Hughes, S., Pearson, O., Rog, D., Tallantyre, E., Nair, R., Nicholas, R., & Evangelou, N. (2021). COVID-19 is associated with new symptoms of multiple sclerosis that are prevented by disease modifying therapies. Multiple Sclerosis and Related Disorders, 52, 102939
https://doi.org/10.1016/j.msard.2021.102939, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa56804
Garjani, A., Hunter, R., Law, G., Middleton, R., Tuite-Dalton, K., Dobson, R., Ford, D., Hughes, S., Pearson, O., Rog, D., Tallantyre, E., Nicholas, R., Morriss, R., Evangelou, N., & Nair, R. (2021). Mental health of people with multiple sclerosis during the COVID-19 outbreak: A prospective cohort and cross-sectional case–control study of the UK MS Register. Multiple Sclerosis Journal, 0, 135245852110204
https://doi.org/10.1177/13524585211020435, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa57028
Evangelou, N., Garjani, A., dasNair, R., Hunter, R., Tuite-Dalton, K., Craig, E., Rodgers, J., Coles, A., Dobson, R., Duddy, M., Ford, D., Hughes, S., Pearson, O., Middleton, L., Rog, D., Tallantyre, E., Friede, T., Middleton, R., & Nicholas, R. (2020). Self-diagnosed COVID-19 in people with multiple sclerosis: a community-based cohort of the UK MS Register. Journal of Neurology, Neurosurgery & Psychiatry, 92(1), 107-109.
https://doi.org/10.1136/jnnp-2020-324449, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa56803
Middleton, R., Pearson, O., Ingram, G., Craig, E., Rodgers, J., Downing-Wood, H., Hill, J., Tuite-Dalton, K., Roberts, C., Watson, L., Ford, D., Nicholas, R., & Group), . (2020). A Rapid Electronic Cognitive Assessment Measure for Multiple Sclerosis: Validation of Cognitive Reaction, an Electronic Version of the Symbol Digit Modalities Test. Journal of Medical Internet Research, 22(9), e18234
https://doi.org/10.2196/18234, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa55412
Glaser, A., Stahmann, A., Meissner, T., Flachenecker, P., Horáková, D., Zaratin, P., Brichetto, G., Pugliatti, M., Rienhoff, O., Vukusic, S., de Giacomoni, A., Battaglia, M., Brola, W., Butzkueven, H., Casey, R., Drulovic, J., Eichstädt, K., Hellwig, K., Iaffaldano, P...., & Middleton, R. (2019). Multiple sclerosis registries in Europe – An updated mapping survey. Multiple Sclerosis and Related Disorders, 27, 171-178.
https://doi.org/10.1016/j.msard.2018.09.032, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa45469
Middleton, R., Rodgers, W., Chataway, J., Schmierer, K., Rog, D., Galea, I., Akbari, A., Tuite-Dalton, K., Lockhart-Jones, H., Griffiths, D., Noble, D., Jones, K., Al-Din, A., Craner, M., Evangelou, N., Harman, P., Harrower, T., Hobart, J., Husseyin, H...., & Ford, D. (2018). Validating the portal population of the United Kingdom Multiple Sclerosis Register. Multiple Sclerosis and Related Disorders, 24, 3-10.
https://doi.org/10.1016/j.msard.2018.05.015, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa40629
Middleton, R., Akbari, A., Lockhart-Jones, H., Jones, J., Owen, C., Hughes, S., Gain, R., & Ford, D. (2017). Clinical Validation of the UKMS Register Minimal Dataset utilising Natural Language Processing. International Journal of Population Data Science, 1(1)
https://doi.org/10.23889/ijpds.v1i1.288, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa39436
Baker, D., Anandhakrishnan, A., Tuite-Dalton, K., Lockhart-Jones, H., Middleton, R., Ford, D., Crowe, C., & Giovannoni, G. (2016). How to refer to people with disease in research outputs: The disconnection between academic practise and that preferred by people with multiple sclerosis. Multiple Sclerosis and Related Disorders, 10, 127-133.
https://doi.org/10.1016/j.msard.2016.09.007, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa32027
Jones, K., Jones, P., Middleton, R., Ford, D., Tuite-Dalton, K., Lockhart-Jones, H., Peng, J., Lyons, R., John, A., & Noble, G. (2014). Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. PLoS ONE, 9(8), e104604
https://doi.org/10.1371/journal.pone.0104604, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa18808
https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0104604&type=printable
Osborne, L., Noble, G., Maramba, I., Jones, K., Middleton, R., Lyons, R., Ford, D., & Reed, P. (2014). Outcome measures for multiple sclerosis. Physical Therapy Reviews, 19(1), 24-38.
https://doi.org/10.1179/1743288x13y.0000000094, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa18316
Jones, K., Ford, D., Jones, P., John, A., Middleton, R., Lockhart-Jones, H., Peng, J., Osborne, L., & Noble, G. (2013). How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register. PLoS ONE, 8(6), e65640
https://doi.org/10.1371/journal.pone.0065640, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa16841
Jones, K., Ford, D., Jones, P., John, A., Middleton, R., Lockhart-Jones, H., Peng, J., Osborne, L., Noble, G., & Jones, P. (2013). The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register. PLoS ONE, 8(1), e55422
https://doi.org/10.1371/journal.pone.0055422, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa16846
Jones, K., Ford, D., Jones, P., John, A., Middleton, R., Lockhart-Jones, H., Osborne, L., & Noble, G. (2012). A Large-Scale Study of Anxiety and Depression in People with Multiple Sclerosis: A Survey via the Web Portal of the UK MS Register. PLoS ONE, 7(7), e41910
https://doi.org/10.1371/journal.pone.0041910, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa16849

Conference Contributions

Middleton, R., Ford, D., & Naeh, D. (2017). iConsent an Electronic Consent Platform with the MS Register. In International Journal of Population Data ScienceSwansea University.
https://doi.org/10.23889/ijpds.v1i1.363, SU Repository: https://cronfa.swan.ac.uk/Record/cronfa53023

Mr Rod Middleton

System Architect/Project Manager, Medicine

+44 (0) 1792 606760

r.m.middleton@swansea.ac.uk

Mr Rod Middleton

Telephone number

Email address

Twitter Account

Research Links

About

Areas Of Expertise

Career Highlights

Publications

Research Highlights

All Research

Journal Articles

Conference Contributions

Mr Rod Middleton