Publications

Journal Articles

  1. & Assessing the medium-term impact of a home-visiting programme on child maltreatment in England: protocol for a routine data linkage study. BMJ Open 7(7), e015728
  2. & Data safe havens to combine health and genomic data: benefits and challenges. International Journal for Population Data Science 1(1)
  3. & The other side of the coin: harm due to the non-use of health-related data. International Journal for Population Data Science 1(1)
  4. & The other side of the coin: Harm due to the non-use of health-related data. 97, 43-51.
  5. & The UK Secure eResearch Platform for public health research: a case study. The Lancet 388, S62
  6. & Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research. JMIR Medical Informatics 4(2), e22
  7. & Local modelling techniques for assessing micro-level impacts of risk factors in epidemiological data: Understanding health and socioeconomic inequalities in childhood educational attainments. PLoS One
  8. & Care.data: why are Scotland and Wales doing it differently?. BMJ 348(g2384)
  9. & Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. PLoS ONE 9(8), e104604
  10. & Factors associated with low fitness in adolescents – A mixed methods study. BMC Public Health 14(1), 764
  11. & A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: a privacy-protecting remote access system for health-related research and evaluation. Journal of Biomedical Informatics
  12. & Involving consumers in the work of a data linkage research unit. International Journal of Consumer Studies 38(1), 45-51.
  13. & Response to Fujita et al.. The American Journal of Gastroenterology 109(1), 138-139.
  14. & Outcome measures for Multiple Sclerosis: A review. Physical Therapy Reviews
  15. & The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register. PLoS ONE 8(1), e55422
  16. & Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis. International Journal of Healthcare Information Systems and Informatics 8(1), 1-16.
  17. & Desirability and expectations of the UK MS Register: Views of people with MS. International Journal of Medical Informatics 82(11), 1104-1110.
  18. & Incidence of Campylobacter and Salmonella Infections Following First Prescription for PPI: A Cohort Study Using Routine Data. The American Journal of Gastroenterology 108(7), 1094-1100.
  19. & Qualitative research within trials: developing a standard operating procedure for a clinical trials unit. Trials 14(1), 54
  20. & How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register. PLoS ONE 8(6), e65640
  21. & Sources of Discovery, Reasons for Registration, and Expectations of an Internet-Based Register for Multiple Sclerosis. International Journal of Healthcare Information Systems and Informatics 7(3), 27-43.
  22. & Development and use of a privacy-protecting total population record linkage system to support observational, interventional, and policy relevant research. The Lancet 380, S6
  23. & Cohort Profile: The Housing Regeneration and Health Study. International Journal of Epidemiology
  24. & The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS. BMC Medical Informatics and Decision Making 12(1), 73
  25. & A Large-Scale Study of Anxiety and Depression in People with Multiple Sclerosis: A Survey via the Web Portal of the UK MS Register. PLoS ONE 7(7), e41910
  26. & Commentary on 'Disability outcome measures in multiple sclerosis clinical trials'. Multiple Sclerosis Journal 18(12), 1718-1720.
  27. & The prescribed duration algorithm: utilising ‘free text’ from multiple primary care electronic systems. Pharmacoepidemiology and Drug Safety 19(9), 983-989.
  28. & Protocol for a population-based Ankylosing Spondylitis (PAS) cohort in Wales. BMC Musculoskeletal Disorders 11(1), 197
  29. & Residential Anonymous Linking Fields (RALFs): A Novel Information Infrastructure to Study the Interaction between the Environment and Individuals' Health. Journal of Public Health, 1-7.
  30. & The SAIL Databank: building a national architecture for e-health research and evaluation. BMC Health Services Research 9(1), 157
  31. & The SAIL databank: linking multiple health and social care datasets. BMC Medical Informatics and Decision Making 9(1), 3

Book Chapters

  1. & Dangers from Within? Looking Inwards at the Role of Maladministration as the Leading Cause of Health Data Breaches in the UK. In Data Protection and Privacy: (In)visibilities and Infrastructures. -239). Springer.

Other Research Outputs

  1. & (2014). A review of evidence relating to harm resulting from uses of health and biomedical data. A report to the Nuffield Council on Bioethics working party on biological and health data, and the Wellcome Trust’s expert advisory group on data access.