Dr Kerina Jones
Associate Professor
Swansea University Medical School
Telephone: (01792) 602764

Kerina Jones is an Associate Professor of Health Informatics at the College of Medicine. She is part of the senior management team of the Secure Anonymised Information Linkage (SAIL) system, and leads the Governance initiatives to ensure data protection and to maximise data utility. She has led the development of successful bids to extend the SAIL system and to secure research grants. She is a co-investigator on the centre grant for CIPHER: the Centre for the Improvement of Population Health through Erecords Research, and leads the Innovative Governance workstream for the Farr Institute of Health Informatics Research. She is a co-investigator on the centre grant for CADRE: the Centre for Administrative Data Research & Evaluation, one of four Administrative Data Research Centres (ADRCs) in the UK. Within this she holds the position of Associate Director for Data and Methodologies. She also leads the Public Involvement and Engagement in data linkage research workstream for SAIL, CIPHER and CADRE. As part of this work, she established an active Consumer Panel for data linkage research.

Kerina is engaged in many projects that bring together disparate sources of data to enhance research and enable new types of studies to be conducted, and has a keen interest in the development of innovative disease registers. She leads the flagship UK Multiple Sclerosis Register, the data model for which brings together clinical data, routinely-collected data and a wealth of patient-reported data to create new knowledge about MS. With an academic background in Biochemistry, she is also particularly interested in projects where laboratory data can be linked to routinely collected health related records to create rich datasets for research. She is actively publishing research and methodology articles.

Areas of Expertise

  • Data linkage: research
  • Data linkage: methodologies and governance

Publications

  1. & Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. PLoS ONE 9(8), e104604
  2. & The other side of the coin: Harm due to the non-use of health-related data. 97, 43-51.
  3. & Factors associated with low fitness in adolescents – A mixed methods study. BMC Public Health 14(1), 764
  4. & Local modelling techniques for assessing micro-level impacts of risk factors in epidemiological data: Understanding health and socioeconomic inequalities in childhood educational attainments. PLoS One
  5. & Care.data: why are Scotland and Wales doing it differently?. BMJ 348(g2384)
  6. & A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: a privacy-protecting remote access system for health-related research and evaluation. Journal of Biomedical Informatics
  7. & Involving consumers in the work of a data linkage research unit. International Journal of Consumer Studies 38(1), 45-51.
  8. & Response to Fujita et al.. The American Journal of Gastroenterology 109(1), 138-139.
  9. & Outcome measures for Multiple Sclerosis: A review. Physical Therapy Reviews
  10. & The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register. PLoS ONE 8(1), e55422
  11. & Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis. International Journal of Healthcare Information Systems and Informatics 8(1), 1-16.
  12. & Desirability and expectations of the UK MS Register: Views of people with MS. International Journal of Medical Informatics 82(11), 1104-1110.
  13. & Incidence of Campylobacter and Salmonella Infections Following First Prescription for PPI: A Cohort Study Using Routine Data. The American Journal of Gastroenterology 108(7), 1094-1100.
  14. & Qualitative research within trials: developing a standard operating procedure for a clinical trials unit. Trials 14(1), 54
  15. & How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register. PLoS ONE 8(6), e65640
  16. & Sources of Discovery, Reasons for Registration, and Expectations of an Internet-Based Register for Multiple Sclerosis. International Journal of Healthcare Information Systems and Informatics 7(3), 27-43.
  17. & Development and use of a privacy-protecting total population record linkage system to support observational, interventional, and policy relevant research. The Lancet 380, S6
  18. & Cohort Profile: The Housing Regeneration and Health Study. International Journal of Epidemiology
  19. & The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS. BMC Medical Informatics and Decision Making 12(1), 73
  20. & A Large-Scale Study of Anxiety and Depression in People with Multiple Sclerosis: A Survey via the Web Portal of the UK MS Register. PLoS ONE 7(7), e41910
  21. & Commentary on 'Disability outcome measures in multiple sclerosis clinical trials'. Multiple Sclerosis Journal 18(12), 1718-1720.
  22. & The prescribed duration algorithm: utilising ‘free text’ from multiple primary care electronic systems. Pharmacoepidemiology and Drug Safety 19(9), 983-989.
  23. & Protocol for a population-based Ankylosing Spondylitis (PAS) cohort in Wales. BMC Musculoskeletal Disorders 11(1), 197
  24. & Residential Anonymous Linking Fields (RALFs): A Novel Information Infrastructure to Study the Interaction between the Environment and Individuals' Health. Journal of Public Health, 1-7.
  25. & The SAIL Databank: building a national architecture for e-health research and evaluation. BMC Health Services Research 9(1), 157
  26. & The SAIL databank: linking multiple health and social care datasets. BMC Medical Informatics and Decision Making 9(1), 3

Supervision

  • Living with Multiple Sclerosis and Anxiety: Determining reasons for anxiety amongst people with MS and possible methods of support (current)

    Student name:
    MRes
    Other supervisor: Dr Kerina Jones
  • User’s perception on the implementation of the Electronic Health Record systems in the Primary Healthcare Centres in Saudi Arabia (current)

    Student name:
    PhD
    Other supervisor: Dr Gareth Noble
    Other supervisor: Dr Kerina Jones
    Other supervisor: Dr Melanie Healy
  • The development and evaluation of a second-generation assessment tool to evaluate medicines online information. (current)

    Student name:
    PhD
    Other supervisor: Dr Gareth Noble
    Other supervisor: Dr Kerina Jones
    Other supervisor: Dr Melanie Healy