New survey published on palliative care services in Welsh Care Homes
Through the survey, Specialist Palliative Care (SPC) providers working in the community conveyed their commitment to their work with care home residents and staff. The majority reported positive working relationships with care homes, yet some recognised that the network of homes they support could be more extensive. Providers acknowledged challenges to delivering SPC in the care home setting and offered constructive suggestions for ways to meet them.
ENRICH Cymru launches in South Wales, March 2018
The Dementia Conference in North Wales on March 7th marked the beginning of the pan-Wales network launch, with over 200 delegates in attendance. Colleagues from WSSCR promoted ENRICH Cymru on their exhibitor’s stall and distributed brand new promotional materials and key resources for Care Homes and Researchers with information about involving people who lack capacity in research at this conference. A bigger launch event in North Wales is in development and details will be publicised in the coming weeks.
The brand new Enrich Cymru web pages went live, providing a resource to assist Care Home staff and Researchers in carrying out high-quality research in Care Homes across Wales. Take a look at: www.swansea.ac.uk/enrich-cymru and follow ENRICH Cymru on twitter @EnrichCymru. ENRICH Cymru was very popular on Twitter, with over 6000 impressions about the launch throughout the course of the launch week.
ENRICH Cymru had its official launch in South Wales. Stephanie Watts, the national Coordinator, presented the benefits of research along with the background to developing the network and promoting a clear focus on co-creating research with staff and residents in Care Homes. 120 people were in attendance at the My Home Life Cymru Conference, with a great turnout from Care Home staff as well as Social Care Wales, CIW and impressive representation from Daisy Cole, the Older People’s Commissioner Wales. Daisy managed to attend both the North Wales Dementia Conference and the My Home Life Cymru conference the next day!
Professor Vanessa Burholt (Centre for Ageing and Dementia Research & Centre for Innovative Ageing, Swansea University) and Professor Fiona Verity (Wales School for Social Care Research, Swansea University) did a fantastic job of co-hosting the day introducing speakers and capturing the spirit of My Home Life Cymru, with Suzy Webster leading and co-ordinating the day. Suzy runs My Home Life Cymru in Wales which includes hosting a leadership program for Care Home Managers using Appreciative Inquiry, focusing on what works well in Care Homes and how we might get it a bit better. Email: Suzanne.firstname.lastname@example.org for more details.
There were two very enlightening panel sessions which gave the opportunity to hear from Care Home Managers, residents living in Care Homes and family members of people living in Care Homes, expressing ‘what really matters’ and ‘what makes a good Care Home’.
Terry Mills, the Chair of the Ministerial Advisory Forum on Ageing gave high praise for the day:
"It was an excellent conference with great key speaker Ian Donaghy who managed to talk about dementia from a personal perspective in an accessible and straight forward way. There was an excellent discussion with people who live in care homes, relatives and care home managers. It was refreshing to hear from real people talking about the good practice and positive examples of their homes."
There was a fantastic selection of interactive workshops ranging from music, photography and arts in Care Homes, to digital technologies and exploring community engagement models. The ‘Care Homes research can be fun – honest!’ workshop was well attended with 20 people participating. Nick Andrews shared his experience with Magic Moments in Care Homes. Cathy Treadaway brought along ‘playful objects’ from the LAUGH project (Cardiff Metropolitan University), an international research project developing new interactive objects for people living with dementia. Stephanie Watts explored through interactive discussions how research can bring benefits to residents and staff, as well as asking workshop delegates to consider what might enable research to run more smoothly. Stephanie distributed a brand new ENRICH Cymru booklet with a flow diagram, to help Care Home staff understand how residents who lack capacity can still take part in research. This resource was developed by Victoria Shepherd at Cardiff University and is freely available on the ENRICH Cymru web page.
Positive feedback was warmly received on the day about how stimulating and interactive the day had been, including the following quote from one of the delegates:
“The best compliment I can pay is that I had originally considered leaving at the coffee break so I could get to Cardiff earlier – but I was too fascinated to leave! “
During the breaks, there was plenty for delegates to get involved in, from ‘pimpimg a zimmer frame’ to saying hello to the Pets as Therapy dog, and marvelling at the wonderful pureed food creations from a very talented Care Home Chef. All in all, this was a fantastic interactive conference focusing on the heart of Care Homes and how staff can be best supported. ENRICH Cymru fits seamlessly alongside My Home Life Cymru in its joint endeavour to ‘improve the quality of life of care home residents and staff across Wales’.
Please email email@example.com, My Home Life Cymru or visit: http://myhomelife.org.uk/
End of Life Care in Care Homes, December 2017
ENRICH Cymru and My Home Life Cymru joined forces to co-host a seminar for Care Home staff and researchers alike to focus on how End of Life Care in Care Homes can be improved. A total of 60 people attended the day, comprising of a mixture of Care Home staff including Managers, Deputy Managers and Carers, as well as health board representatives such as Consultant Psychiatrists and Dementia Care Trainers, Research staff and members of the third sector including the Paul Sartori Hospice At Home Foundation:
Sophie Thomas, Paul Sartoti Foundation
‘This was an enormously useful day for me; there are few opportunities to meet people from care homes – let alone the numbers and range of homes that attended this meeting.’
Discussion and vote
As part of the conference, a discussion session was led by Alisha Newman, Research Associate working for the Marie Curie Palliative Care Research Centre and the Wales Cancer Research Centre. The aim being to answer the question: What are the top three challenges to providing good quality end of life care for people living in care homes?
Seven groups were convened, ensuring a mix of participant backgrounds so that a range of views drove the discussions. A facilitator was appointed to each group to ensure that all participants had opportunity to contribute to the discussion and the identified challenges were documented.
Each participant brought with them a pre-prepared list of what they believed to be the top three challenges to providing good quality EOLC for people living in care homes. These were used to drive the group debates.
Through discussion each group agreed their top three challenges and wrote them on a flip chart. After a whole room discussion on the contents of the flip charts, delegates were asked to review the top challenges identified by all seven groups and to cast their final vote for their top three. In total 63 votes were cast.
After the event, the challenges were reviewed and duplicates and similar themes were combined to make a final short list of the key challenges to delivering good quality EOL care in Welsh care homes. Final report pending.
Engagement in the event:
Twitter Impressions on the day: 5676
Twitter Impressions in the following days about feeding back on the seminar: 505
Please email firstname.lastname@example.org for a copy of the interim evaluation report. The event was co-funded by the Centre for Ageing and Dementia Research and the Wales School for Social Care Research.